Category Archives: Side Effects, Late Effects & Disability

Facing Chemo Project in VIEWFIND

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Sparking the Facing Chemo project as Robert Houser’s photographic subject, watching him grow it to large scale international reach, and subsequently establish the Facing Light Foundation, continues to be a personally transformative and humbling experience. “In 2008, photojournalist Robert Houser was nearing the end of a routine magazine shoot for Associations Now when his subject, Christabel, disclosed something […]

Dear Shingles, Quit Riding My Ass

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It always only lines up in retrospect–the consecutive days of splitting headaches upon waking, nerve pain coursing through my body, and extreme fatigue. But sometimes headaches are an independent event, nerve pain can be attributed to post-herpetic neuralgia, and I live with chronic fatigue as a consequence of permanent lung injury regardless. So, it’s hard […]

Minority within Minority: #AintIaSurvivor

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After an exhausting eight hours of pulmonary (lung) function testing, the head pulmonologist at one of the country’s top pulmonary function labs in California, handed me the written results of my performance, and explained the series of tables and graphs. “You lost 40% of your lung tissue, and according to these tests, the 60% of […]

Hitting 40 After Hitting Cancer 2x

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In my life before cancer, I thought 40 was middle-aged. But after hitting cancer twice, hitting 40 – and any age for that matter – never feels like I’m in the middle of anything, but more like I’m on the edge of something. The last prognosis I was given predicted that I had an 80% […]

Facing Chemo on BUZZFEED today!

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If you haven’t heard my story already, the quotes in this BuzzFeed article nicely highlight how Robert Houser​ ended up photographing my baldness on a rainy day in my tiny San Francisco apartment, subsequently growing Facing Chemo, a photographic project and the Facing Light Foundation​. I first met Bob when he photographed me for a […]